The long shadow of childhood cancer: a qualitative study on insurance hardship among survivors of childhood cancer

Abstract Background The long-term consequences of childhood cancer have received increasing attention due to the growing number survivors over past decades. However, insurance hardships are mostly unknown. This study explored qualitatively, in a sample (CCS), (i) experiences and needs CCS living Switzerland with special focus on related insurance; (ii) views law experts experience cancer. Methods Semi-structured interviews were conducted 28 3 (one legal expert, two experts). Data was analysed using qualitative content analysis. Results Three key themes emerged from CCS: 1) insurance, 2) perception discrimination, 3) barriers for support. interviewed provided further detailed clarification CCS’ concerns. Our findings indicated that some can move their history, while others continue face hardships. reported confusion about opportunities services within social security system most relied personal contacts guidance. Finally, expressed strong need socio-economic support questions, especially disability insurance. Conclusions With population CCS, it is essential assess interplay between medical psychosocial health hardship. Supportive should aim ameliorate Better understanding relationship during survivorship will inform efforts improve financial outcomes survivors. We call public, lawmakers, researchers, insurers, patient organizations come together discuss future perspectives avoid risk discrimination